Next PKUAI meeting is on 20th November at 7.30 pm in Moran's Red Cow Hotel. ALL WELCOME Proposed agenda: PKUAI Charity status Kuvan update New low protein products assessment process (Cambrooke, Mevalia, Vitaflo) Delayed blood results PKU research prioritization -…
Read this executive summary and download the full report. EP-PKU-Roundtable-11-July-2018-Final-Report This Policy Roundtable, organised by the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (ESPKU), was hosted by MEPs Deirdre Clune (Ireland, EPP) and Nessa Childers (Ireland, S&D).…
Dr Cary Harding speaks about evolution of treatment for PKU with the PKU Association of Ireland at the National PKU Alliance conference 2018 in Atlanta, Georgia. Dr. Harding is an Associate professor in the Departments of Molecular and Medical Genetics…
Minutes PKUAI meeting 30th Aug 2018 at 7.30pm at the Clayton Airport Hotel, Dublin Attendees: Fergus Woodcock, Karen Willetts, Karen Lavery, Nicola Whelan via skype, Amy Meegan (Nutricia), Pauline Woodcock, Colm Galligan, Gary Conway, Ciara Cadwell, Riah Berry and Mark…
The Vitaflo team in Ireland are kindly offering to fund 3 places, with a plus one each, to attend the ESPKU conference in Venice on the 1st November. See https://www.espku.org/conferences/e-s-pku-conference-2018/ for details on the conference. Vitaflo will cover the cost…