Cyber attack on HSE.

Wenesday 19th May 2021: Message from Metabolic Unit, Temple St : Kuvan PPN High-tech drug prescriptions including Kuvan are being affected by the cyber attack on the HSE. The normal process in prescribing Kuvan through the HSE high-tech hub is…

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Irish PKU Community In Conversation series

The PKUAI ‘In Conversation series' launched on Friday 9th October with guest speaker Krystal Suchocki, PKU Adult & Registered Nurse with Classical PKU discussing: Living with PKU and Palynziq® for the past 10 years.  To watch the video please click https://youtu.be/rArtXIO-TVg…

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PKUAI Website Update

Community survey to assist shaping new PKUAI website The PKU Association of Ireland (PKUAI) is a small voluntary group set up to support patients and carers of patients with PKU in Ireland.  The PKUAI are refreshing the existing web-site creating…

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PKU & Gene Therapy Market Research

PKU & Gene Therapy Market Research   A research study is seeking PKU Adults & PKU carers / parents interested in taking part in market research about Gene Therapy for PKU.  The study aims to better understand the lived experiences, challenges and…

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