Next PKUAI meeting is on 20th November at 7.30 pm in Moran’s Red Cow Hotel. ALL WELCOME

Proposed agenda:

PKUAI Charity status

Kuvan update

New low protein products assessment process (Cambrooke, Mevalia, Vitaflo)

Delayed blood results

PKU research prioritization – UCD HRB PPI Ignite

IT Tralee Research

Rare Diseases Ireland

IPPOSI event and patient education programme

ESPKU Conference (incl. Newborn screening in Italy)

European patients advocacy Forum

Upcoming events and AOB