LIVING WITH PKU AND THE EMPOWERING ROLE OF ADVOCACY Bernadette Gilroy, Chair PKUAI joins group of Inspirational Speakers @ TEDX TRALEE this October The PKU Association of Ireland (PKUAI) are delighted to announce Bernadette Gilroy, Chair, PKUAI is part of the line-up…
Wenesday 19th May 2021: Message from Metabolic Unit, Temple St : Kuvan PPN High-tech drug prescriptions including Kuvan are being affected by the cyber attack on the HSE. The normal process in prescribing Kuvan through the HSE high-tech hub is…
The PKUAI ‘In Conversation series' launched on Friday 9th October with guest speaker Krystal Suchocki, PKU Adult & Registered Nurse with Classical PKU discussing: Living with PKU and Palynziq® for the past 10 years. To watch the video please click https://youtu.be/rArtXIO-TVg…
Ensure your future health PKU Adult Online Webinar* – ensuring your future health! Date: Wednesday 14th Sept @8pm Registration: Details TBC soon The PKU Association of Ireland (PKUAI) is delighted to announce it is hosting a joint adult online webinar…
An Irish Mothers Significant Contribution To Medical History Unlocking of The First Treatment For Rare Disease PKU The Leitrim Historical Society are delighted to welcome Bernadette Gilroy, Chairperson PKU Association Ireland (PKUAI) to present a public lecture on Leitrim lady Mary Rooney Jones (1917 - 1981) who fought…
Please find attached information on a study taking place in the Mater. It is hoped that the study will help the NCIMD-Adult Service Team better understand the needs of their patients and facilitate ways to improve delivery of the service.…