Wenesday 19th May 2021:
Message from Metabolic Unit, Temple St : Kuvan PPN High-tech drug prescriptions including Kuvan are being affected by the cyber attack on the HSE. The normal process in prescribing Kuvan through the HSE high-tech hub is therefore not possible at the moment.Kuvan prescriptions will be issued on a paper high- tech prescription and will be posted to the individuals this week. This prescription must be brought to the pharmacy to ensure the continuity of drug supply. We will notify the PKU Association when the service reverts to normal. If you have any queries in this regard, please call the metabolic nurse specialist in the Metabolic Unit, Temple Street. Telephone: 01 8784579 or 8784421. * Note: Patients should not identify themselves under this public post.
Monday 17th May 2021:
Unfortunately services at the Metabolic Unit in Temple street have been impacted. Appointments for today, Monday 17th and Tuesday 18th have been cancelled. The unit’s phone and computer systems have been shut down. The unit have asked us to let you all know that you should continue with bloods, taking them and sending them in as usual. There will be a delay with the results. The unit will contact you when the results become available. Please be patient with them. We will update you as soon as possible. For any emergencies please contact the main hospital number, which is working, on 01 8784200 . No news at present from the Mater. Please pass this message on to PKU families you know.