Minutes of meeting 20th November 2018
Minutes 20th November 18 PKUAI
Promin Fresh Bread Christmas Schedule
Please see attached the ordering and delivery schedule for Promin Fresh Bread and other Low Protein products supplied via Biofact. Important dates coming up to Christmas 2017 LAST ORDERS BREAD Xmas 2018
Nutricia’s Low Protein Living Weekend
Your feedback is vital in helping to improve and develop future low protein events. Following on from another successful Low Protein Living Weekend, Nutricia would be very grateful if you could take a couple of minutes to complete this survey…
Do you have PKU? Be Heard!!
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
PKU Association of Ireland meeting – All welcome
Next PKUAI meeting is on 20th November at 7.30 pm in Moran's Red Cow Hotel. ALL WELCOME Proposed agenda: PKUAI Charity status Kuvan update New low protein products assessment process (Cambrooke, Mevalia, Vitaflo) Delayed blood results PKU research prioritization -…