Next PKUAI meeting ALL WELCOME

16 August 2018

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The next PKUAI meeting will take place on Thursday 30th August at 7.30pm - 9.30pm at the Clayton Airport hotel

ALL WELCOME! Though not necessary, please RSVP to info@pku.ie if you plan on attending (it helps to know how many we can expect!)

Please see below proposed agenda. If anything has been forgotten, or you would like anything added to the agenda, please do not hesitate to get in touch via email to info@pku.ie

Proposed Agenda
Mevalia - Presentation followed by Q & A
Raffle for Vitaflo sponsored ESPKU conference

Mater's PKU research - better understanding the impact of PKU
International PKU Day 28th June 2018 (breakfast briefing and social evening)
NPKUA Conference in America (research, cure, treatments, home monitoring kit, patient registry)
ESPKU - EU Parliament event (NBS, HTA, Food labelling, HPA)
Charity Status update
Kuvan - update and plan next steps
Sugar Tax
Restaurants catering for PKU - Irish Law
Brexit - Should we have any concerns
Upcoming events: Nutricia, Vitaflo, ESPKU
AOB and set next meeting date

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Every day, families affected by PKU face overwhelming emotional, physical, and financial challenges. From costly medical food to ongoing testing and specialist care, managing PKU is a lifelong commitment. Your support helps us:

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