Empowering Lives, Advocating for PKU
The PKU Association of Ireland is dedicated to supporting individuals and families affected by Phenylketonuria (PKU) and other metabolic disorders. Through advocacy, education, and community, we strive to improve care and awareness.
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Our Mission: Support, Awareness, Action
PKU Association Of Ireland
We work to ensure that everyone affected by PKU has access to the best possible care, resources, and support. By raising awareness and advocating for policy changes, we aim to improve the lives of those living with PKU in Ireland.
How We Make a Difference
Support
Providing guidance, resources, and a strong community for individuals and families.
Advocacy
Your health, your lifestyle, managing PKU into adulthood
Education
Real talk, shared experiences, and staying on track.
Events & Campaigns
Information and insight for those diagnosed later in life.
Our Journey
Meet The Board
The PKU Association of Ireland was founded by families and individuals who wanted to create a stronger support network for those affected by PKU. Over the years, we have grown into a passionate community working to improve lives through advocacy, education, and connection.
Bernadette Sheehan Gilroy
Board Member
Gavin O'Donnell
Chairperson
Dr Colm Galligan
Board Member
Join Us in Making a Difference
Whether you’re living with PKU, supporting a loved one, or simply passionate about making an impact, we welcome you to be part of our community. Get involved through donations, volunteering, or spreading awareness.
Contact UsYour Donation Can Change a Life
Every day, families affected by PKU face overwhelming emotional, physical, and financial challenges. From costly medical food to ongoing testing and specialist care, managing PKU is a lifelong commitment. Your support helps us:
Provide vital resources to families in need
Fund education and awareness campaigns
Advocate for better access to treatment and care
Support groundbreaking research into new therapies
