Monday 15th January, 2018 HSE DECISION ON ONLY DRUG TO TREAT PKU THIS THURSDAY PKUAI HOPES FOR POSITIVE OUTCOME FROM PROTRACTED PROCESS This Thursday 18th January, The National Drugs Group will conduct final review on ‘Kuvan’, the only drug currently available to treat the small…
The next PKUAI meeting is on the 9th January at 7.30pm in Crowne Plaza Santry. ALL WELCOME. Though not necessary if you could let me know by email to info@pku.ie if you plan on coming that would be helpful.
We need to get a meeting with Simon Harris TD, Minister for health. All non constituents can request an appointment 'to discuss pertinent information relating to the Kuvan campaign for Irish PKU patients' by emailing ministersdiary@health.gov.ie Please ask your relatives…
A report on Irish patients shows the improved quality of life given by Kuvan Kuvan Study_JIMDreports_Sept2017