Drinks that DO NOT CONTAIN aspartame

LIST of products NOT containing Aspartame Ribena Blackcurrant concentrate - RoI & NI Ribena Blackcurrant ready-to-drink   - RoI & NI Ribena Very Berry   - NI only Ribena Mini Blackcurrant   - RoI & NI Ribena Mini Apple/Mango   - RoI & NI…

Read More

PKU Association of Ireland meeting

The next PKU meeting will take place on Tuesday 6th March at 7.30pm in the Crowne Plaza Santry. All Welcome! If you plan on coming please email info@pku.ie If there's anything you'd like added to the agenda (Or if something…

Read More

Rare Barometer Voices

Rare Barometer Voices is a community of people living with a rare disease who are willing to participate in EURORDIS-Rare Diseases Europe surveys and studies. EURORDIS, the European Organisation for Rare Diseases, is a non-governmental patient-driven alliance of patient organisations.…

Read More

Minutes of meeting 9th January 2018

CROWNE PLAZA HOTEL SANTRY  - TUESDAY 9TH JAN 2018 – 7:30pm to 9:30pm Attending: Karen Willetts, Karen Philips, Gwen Kennedy, Dr Pastores (Mater consultant) & Marianne McGovern (Mater Dietician) ,Gary Conway, Ciara Cadwell, Sinead Kearns , Fiona Kelly Kiernan, Amy…

Read More

IPPOSI

Please join me in congratulating Colm Galligan, who has a little girl with PKU, on his appointment to the board of IPPOSI. IPPOSI – The Irish Platform for Patient Organisations, Science and Industry – is a patient-led organisation that works…

Read More