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Susan Reddy, mum to Joshua, has written about his PKU journey. See pkuandus.wordpress.com

GOOD NEWS: New low protein products have been added to the GMS list! The following products are available to order. Please contact your dietitian for a prescription. Taranis Dalia Powder 400 g tin Taranis Low Protein Cake All Flavours (6…

PKU Association of Ireland meeting on the 28th Aug 7.30pm in the Hilton Dublin (on the canal). ALL WELCOME!! Agenda to follow but we'll defo be discussing what can be done about getting access to new lp foods, kuvan, the…

28th June is International PKU Day! To celebrate this, I was invited to join an internal training day about PKU being held by Biomarin (the company that make Kuvan and are developing other treatment option for PKU).  Please see attached…

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