European Society of PKU support Kuvan for Irish patients
Please see a letter of support from the E.S.PKU espku letter of support signed
Health Press Release
IRISH, EUROPEAN AND INTERNATIONAL BACKING FOR PKU CAMPAIGN SECURED PKU FAMILIES PLEA TO MINISTER FOR HEALTH & HSE TO GRANT FUNDING CURRENT PKU TREATMENT IN IRELAND DOES NOT MANAGE DISEASE The PKU Association of Ireland (PKUAI) has received a boost…
PKU Briefing in the Dail 19th October
PKUAI members briefed a great turnout of Ministers on PKU. Over 35 ministers attended for the presentation and gave much positive feedback. The key issues raised were cost & dietary therapy which were both answered at length by PKUAI. Feedback from…
Template TD letter re Kuvan Sept 2017
We have finally reached the point where the decision makers (the HSE) will decide on whether or not to cover the cost of Kuvan. Now is the time to raise this issue with your local TDs. Please find attached a…
PKU Association of Ireland meeting
SAVE THE DATE! We have booked the Hilton Hotel, Charlemont Place, D2 for the 24th October at 7.30pm for our next meeting. ALL WELCOME For more info join our facebook group - PKU Association of Ireland or email info@pku.ie