PKU Association meeting
The next PKUAI meeting is on the 9th January at 7.30pm in Crowne Plaza Santry. ALL WELCOME. Though not necessary if you could let me know by email to info@pku.ie if you plan on coming that would be helpful.
Calling on all PKUAI members!
We need to get a meeting with Simon Harris TD, Minister for health. All non constituents can request an appointment 'to discuss pertinent information relating to the Kuvan campaign for Irish PKU patients' by emailing ministersdiary@health.gov.ie Please ask your relatives…
Report on Irish Patients on Kuvan
A report on Irish patients shows the improved quality of life given by Kuvan Kuvan Study_JIMDreports_Sept2017
European Medical Expert supports Kuvan for PKU in Ireland
PKU expert Dr Francjan Van Spronsen, head of the division of Metabolic Diseases at University Medical Centre Groningen, The Netherlands and Chair of the Scientific Advisory Committee E.S.PKU has provided his support for Kuvan for PKU patients in Ireland. See…