Next PKUAI meeting is on 20th November at 7.30 pm in Moran’s Red Cow Hotel. ALL WELCOME
Proposed agenda:
PKUAI Charity status
Kuvan update
New low protein products assessment process (Cambrooke, Mevalia, Vitaflo)
Delayed blood results
PKU research prioritization – UCD HRB PPI Ignite
IT Tralee Research
Rare Diseases Ireland
IPPOSI event and patient education programme
ESPKU Conference (incl. Newborn screening in Italy)
European patients advocacy Forum
Upcoming events and AOB