PKU Association of Ireland’s Patient Portal.
Don’t be left behind, get involved in this exciting initiative!
We are all aware of the incredible medical advances taking place around the world which PKU treatment is very much so a part of. There are many ways in which PKU treatment can be improved here in Ireland and we are looking forward to a very bright future for those with PKU. We as a PKU community here in Ireland need to prepare to ensure that we are not left behind.
The best way forward is to gather up our information on living day-to-day with PKU. Only with this information will be able to put forward our case for access to new treatments, up-to-date medical foods and improved clinical services. Together we have a stronger voice!
Please email firstname.lastname@example.org if you want to do all you can to ensure we are not left behind.