For those with HCU - Experience of diagnosis and patient satisfaction https://www.hcunetworkaustralia.org.au/experience-of-diagnosis-and-patient-satisfaction/
The recent international PKU conference was attended by companies, who specialise in low protein products, and would like to make their products available to Irish patients. The PKUAI had been advised that the products available to Irish patients would be reviewed before the end of 2016. We have written to the Primary Care Reimbursement Services in the HSE to seek clarification from them on the following:
- The date of the review
- How patients will be represented at the review.
- The list of products that are to be included in the review
- The expected time period for the reviews to be completed.
Please do not hesitate to contact your TD about this issue. Keep an eye on this website for further updates