Our next PKU Association of Ireland meeting is Monday 7th October at 7.30pm at the Hilton Hotel, Charlemont Place, D2. All welcome.

ALL WELCOME: Please email info@pku.ie if you plan on attending. It is not necessary to rsvp, but it helps to have an idea of numbers.

Proposed agenda: (If there is anything you would like to add to the agenda please do not hesitate to get in touch.)

Patient registry

PKU research prioritisation workshop

PKU Research participation


Access to treatment – lp foods and substitutes, medicines etc

Raising awareness of PKU- Living lens, Live Unlimited

Gene Therapy Clinical Trial UK

ESPKU Conference and lobbying EU parliament

Upcoming events: Nutricia, Vitaflo etc