Our next PKU Association of Ireland meeting is Monday 7th October at 7.30pm at the Hilton Hotel, Charlemont Place, D2. All welcome.
ALL WELCOME: Please email firstname.lastname@example.org if you plan on attending. It is not necessary to rsvp, but it helps to have an idea of numbers.
Proposed agenda: (If there is anything you would like to add to the agenda please do not hesitate to get in touch.)
PKU research prioritisation workshop
PKU Research participation
Access to treatment – lp foods and substitutes, medicines etc
Raising awareness of PKU- Living lens, Live Unlimited
Gene Therapy Clinical Trial UK
ESPKU Conference and lobbying EU parliament
Upcoming events: Nutricia, Vitaflo etc