Kuvan

Statement: The PKU Association Ireland The PKU Association Ireland (PKUAI) has been made aware that KUVAN® (sapropterin dihydrochloride) has been approved by the HSE Senior Leadership team and will be available in specific circumstances to our patient group for reimbursement from…

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PKU Adults needed for research at Mater

UPDATE JANUARY 2019: MORE ADULTS BOTH WITH AND WITHOUT PKU ARE NEEDED TO PARTICIPATE IN THIS STUDY. PLEASE CONTACT LaurinGrabowsky@Mater.ie  IF YOU CAN PARTICIPATE. PKU study recruitment poster Jan 19 From the Mater Hospital: Phenylketonuria (PKU) Patients Needed for Research…

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PKUAI next meeting 28th February 2019

All are welcome to the next PKU Association of Ireland meeting on the 28th February 2019 at 8pm in the Talbot hotel, Stillorgan, Just 10 mins from the city centre.  Come along to meet some families and adults with PKU.  Take…

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PKU Association of Ireland Charity status

Delighted to announce that the PKU Association of Ireland is now registered with the Charity Regulator here in Ireland!! Registered Charity Number (RCN): 20202487 Well done to all involved who helped make this possible. It is a giant step forward…

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