PKUAI next meeting 28th February 2019

All are welcome to the next PKU Association of Ireland meeting on the 28th February 2019 at 8pm in the Talbot hotel, Stillorgan, Just 10 mins from the city centre.  Come along to meet some families and adults with PKU.  Take…

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PKU Adults needed for research at Mater

UPDATE JANUARY 2019: MORE ADULTS BOTH WITH AND WITHOUT PKU ARE NEEDED TO PARTICIPATE IN THIS STUDY. PLEASE CONTACT LaurinGrabowsky@Mater.ie  IF YOU CAN PARTICIPATE. PKU study recruitment poster Jan 19 From the Mater Hospital: Phenylketonuria (PKU) Patients Needed for Research…

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PKU Association of Ireland Charity status

Delighted to announce that the PKU Association of Ireland is now registered with the Charity Regulator here in Ireland!! Registered Charity Number (RCN): 20202487 Well done to all involved who helped make this possible. It is a giant step forward…

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Rare Diseases Ireland

    Delighted to announce that the PKU Association of Ireland has become a member of Rare Diseases Ireland. Here is a link to their website http://rdi.ie/ for more info. PKUAI are looking forward to working closely with Rare Diseases Ireland!!!…

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