Your feedback is vital in helping to improve and develop future low protein events. Following on from another successful Low Protein Living Weekend, Nutricia would be very grateful if you could take a couple of minutes to complete this survey…
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
From the Mater Hospital: Phenylketonuria (PKU) Patients Needed for Research The National Centre for Inherited Metabolic Disorders (NCIMD) – ADULT SERVICE - is conducting a study aimed at better understanding the impact of PKU on cognitive and executive function. Specifically,…
Please see attached the ordering and delivery schedule for Promin Fresh Bread and other Low Protein products supplied via Biofact. Important dates coming up to Christmas 2017 LAST ORDERS BREAD Xmas 2018
Next PKUAI meeting is on 20th November at 7.30 pm in Moran's Red Cow Hotel. ALL WELCOME Proposed agenda: PKUAI Charity status Kuvan update New low protein products assessment process (Cambrooke, Mevalia, Vitaflo) Delayed blood results PKU research prioritization -…