Live Unlimited PKU Presents “Living with PKU in Challenging Times”‘A Live Panel Event on Facebook’. This Sunday 28 th June @ 1pm The current pandemic is affecting how we go about our daily lives. For many, this uncertainty and change…
PKU "LIVING IN CHALLENGING TIMES” PKU COMMUNITY UNITES FOR INTERNATIONAL PKU DAY Today, Sunday 28th June 2020, The PKUAI (PKU Association of Ireland) join with PKU communities throughout Europe and across the globe to celebrate International PKU Day and unite in calling for…
The European Parliament Cross-Party Alliance on PKU held the inaugural meeting of the Alliance in the European Parliament on 3 March 2020. ESPKU is in charge of coordinating the European Parliament Cross-Party Alliance on PKU, of which the PKU Association…
PKUAI has been made aware of many patients' concerns regarding the lack of action on implementing the Kuvan care pathway, and following advice from metabolic consultants, we have written to seek an urgent update on the availability of Kuvan from…
CALL TO ACTION: KUVAN As you are aware the situation with Kuvan in Ireland requires action. Can you please make known your dissatisfaction by contacting your local representatives. You can find their contact details at https://www.whoismytd.com It would be helpful…