The PKU Association of Ireland are members of the European Society of PKU (ESPKU). Very recently the ESPKU wrote to every MEP at the European Parliament asking them to support the Cross Party Alliance on PKU. Please see below a…
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
UPDATE MARCH 2019: It is now possible to complete all the testing in one single appointment so hopefully that makes it easier to participate. MORE ADULTS BOTH WITH AND WITHOUT PKU ARE NEEDED TO PARTICIPATE IN THIS STUDY. PLEASE CONTACT…
PKUAI are holding a research prioritization workshop followed by a meal at the Clayton Airport Hotel on the 30th November at 4pm. There are limited places and they will be allocated on a first come first served basis. RSVP is…
Please see attached statement from the European Society of PKU https://www.espku.org/2019/11/05/treatment-for-adult-metabolic-patients-is-insufficient/ ESPKU-Statement-on-Transition-and-Adult-Care Nov 19
PKU Association of Ireland’s Patient Portal. Don’t be left behind, get involved in this exciting initiative! We are all aware of the incredible medical advances taking place around the world which PKU treatment is very much so a part of.…
MINUTES OF THE PKUAI MEETING 7th October 2019 – The Hilton Hotel D2 Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Bernadette Gilroy, Karen Philips, Killian Fitzgerald, Gavin O’Donnell, Colm Galligan Patient registry: it was agreed that in…