Call to Action – Kuvan

CALL TO ACTION: KUVAN As you are aware the situation with Kuvan in Ireland requires action. Can you please make known your dissatisfaction by contacting your local representatives. You can find their contact details at https://www.whoismytd.com It would be helpful…

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ESPKU Cross Party Alliance on PKU

Members of the European Parliament Cross-Party Alliance on PKU and the European Society for Phenylketonuria (ESPKU), are holding the inaugural meeting of the Alliance in the European Parliament on 3 March between 14.00 and 16.00. Your MEP will have received…

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PKU Research and celebration

PKUAI are holding a research prioritization workshop followed by a meal at the Clayton Airport Hotel on the 30th November at 4pm.  There are limited places and they will be allocated on a first come first served basis. RSVP is…

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