Do you have PKU? Be Heard!!
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
PKU Adults needed for research at Mater
UPDATE MARCH 2019: It is now possible to complete all the testing in one single appointment so hopefully that makes it easier to participate. MORE ADULTS BOTH WITH AND WITHOUT PKU ARE NEEDED TO PARTICIPATE IN THIS STUDY. PLEASE CONTACT…
ESPKU Conference 2019
Update: this has been won by Killian Fitzpatrick! Well done Killian. Looking forward to hearing all about it! The PKU Association of Ireland have again been given the opportunity to nominate a person with a guest of their choice to…
Press Release Friday 28 June 2019
PRESS RELEASE Friday 28 June, 2019 PKU COMMUNITY GET APPROVAL FOR ONLY PKU DRUG - KUVAN CELEBRATIONS ON INTERNATIONAL PKU DAY Today, Friday 28th June, On International PKU Day, The PKU Association of Ireland (PKUAI) celebrate KUVAN® (sapropterin dihydrochloride), the only personalised…
PKUAI next meeting Wednesday 15th May 7.30pm Clayton Hotel Leopardstown
PKUAI next meeting Wednesday 15th May, 7.30pm Clayton Hotel Leopardstown We are delighted to let you know that at this meeting we will be joined by Dr Cary Harding* from America, one of the world's leading experts on PKU. Please…
Minutes of the meeting 28th February 2019
MINUTES OF THE PKUAI MEETING 28th FEBRUARY 2019 – THE TALBOT HOTEL STILLORGAN Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Amy Meegan (Nutricia), Fiona Kiernan, Bernadette Gilroy, Mary-Ellen O’Shea (Tralee IT), Nicola Whelan (video call). European Parliament…