Do you have PKU? Be Heard!!
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
SAVE THE DATE
Next PKUAI meeting is on 20th November at 7.30 pm in Moran's Red Cow Hotel. ALL WELCOME
PKU Adults needed for research at Mater
From the Mater Hospital: Phenylketonuria (PKU) Patients Needed for Research The National Centre for Inherited Metabolic Disorders (NCIMD) – ADULT SERVICE - is conducting a study aimed at better understanding the impact of PKU on cognitive and executive function. Specifically,…
ESPKU address the high burden and significant unmet needs in Phenylketonuria (PKU)
Read this executive summary and download the full report. EP-PKU-Roundtable-11-July-2018-Final-Report This Policy Roundtable, organised by the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (ESPKU), was hosted by MEPs Deirdre Clune (Ireland, EPP) and Nessa Childers (Ireland, S&D).…
Dr Cary Harding speaks about evolution of treatment for PKU
Dr Cary Harding speaks about evolution of treatment for PKU with the PKU Association of Ireland at the National PKU Alliance conference 2018 in Atlanta, Georgia. Dr. Harding is an Associate professor in the Departments of Molecular and Medical Genetics…
Minutes of meeting 30 Aug 2018
Minutes PKUAI meeting 30th Aug 2018 at 7.30pm at the Clayton Airport Hotel, Dublin Attendees: Fergus Woodcock, Karen Willetts, Karen Lavery, Nicola Whelan via skype, Amy Meegan (Nutricia), Pauline Woodcock, Colm Galligan, Gary Conway, Ciara Cadwell, Riah Berry and Mark…