The PKU Association of Ireland are members of the European Society of PKU (ESPKU). Very recently the ESPKU wrote to every MEP at the European Parliament asking them to support the Cross Party Alliance on PKU. Please see below a…
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
UPDATE MARCH 2019: It is now possible to complete all the testing in one single appointment so hopefully that makes it easier to participate. MORE ADULTS BOTH WITH AND WITHOUT PKU ARE NEEDED TO PARTICIPATE IN THIS STUDY. PLEASE CONTACT…
MINUTES OF THE PKUAI MEETING 7th October 2019 – The Hilton Hotel D2 Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Bernadette Gilroy, Karen Philips, Killian Fitzgerald, Gavin O’Donnell, Colm Galligan Patient registry: it was agreed that in…
Our next PKU Association of Ireland meeting is Monday 7th October at 7.30pm at the Hilton Hotel, Charlemont Place, D2. All welcome. ALL WELCOME: Please email info@pku.ie if you plan on attending. It is not necessary to rsvp, but it…
Update: this has been won by Killian Fitzpatrick! Well done Killian. Looking forward to hearing all about it! The PKU Association of Ireland have again been given the opportunity to nominate a person with a guest of their choice to…