PRESS RELEASE Friday 28 June, 2019 PKU COMMUNITY GET APPROVAL FOR ONLY PKU DRUG - KUVAN CELEBRATIONS ON INTERNATIONAL PKU DAY Today, Friday 28th June, On International PKU Day, The PKU Association of Ireland (PKUAI) celebrate KUVAN® (sapropterin dihydrochloride), the only personalised…
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
UPDATE MARCH 2019: It is now possible to complete all the testing in one single appointment so hopefully that makes it easier to participate. MORE ADULTS BOTH WITH AND WITHOUT PKU ARE NEEDED TO PARTICIPATE IN THIS STUDY. PLEASE CONTACT…
PKUAI next meeting Wednesday 15th May, 7.30pm Clayton Hotel Leopardstown We are delighted to let you know that at this meeting we will be joined by Dr Cary Harding* from America, one of the world's leading experts on PKU. Please…
MINUTES OF THE PKUAI MEETING 28th FEBRUARY 2019 – THE TALBOT HOTEL STILLORGAN Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Amy Meegan (Nutricia), Fiona Kiernan, Bernadette Gilroy, Mary-Ellen O’Shea (Tralee IT), Nicola Whelan (video call). European Parliament…
All are welcome to the next PKU Association of Ireland meeting on the 28th February 2019 at 8pm in the Talbot hotel, Stillorgan, Just 10 mins from the city centre. Come along to meet some families and adults with PKU. Take…