Irish PKU Community In Conversation series

The PKUAI ‘In Conversation series' launched on Friday 9th October with guest speaker Krystal Suchocki, PKU Adult & Registered Nurse with Classical PKU discussing: Living with PKU and Palynziq® for the past 10 years.  To watch the video please click https://youtu.be/rArtXIO-TVg…

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PKUAI Website Update

Community survey to assist shaping new PKUAI website The PKU Association of Ireland (PKUAI) is a small voluntary group set up to support patients and carers of patients with PKU in Ireland.  The PKUAI are refreshing the existing web-site creating…

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PKU & Gene Therapy Market Research

PKU & Gene Therapy Market Research   A research study is seeking PKU Adults & PKU carers / parents interested in taking part in market research about Gene Therapy for PKU.  The study aims to better understand the lived experiences, challenges and…

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Press release 28 June 2020

PKU "LIVING IN CHALLENGING TIMES” PKU COMMUNITY UNITES FOR INTERNATIONAL PKU DAY Today, Sunday 28th June  2020,  The PKUAI (PKU Association of Ireland) join with PKU communities throughout Europe and across the globe to celebrate International PKU Day and unite in calling for…

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