Minutes of meeting 20th November 2018

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CALL TO ACTION: KUVAN As you are aware the situation with Kuvan in Ireland requires…

Please see info for the Metabolic Unit's International PKU event From Temple street: As you…

Please see a letter of support from the E.S.PKU espku letter of support signed

What is PKU?

PKU is the acronym for Phenylketonuria. PKU is a rare genetic metabolic disorder that is detected shortly after birth through the heel prick test.

Children with PKU are unable to break down an amino acid called Phenylalanine (phe). This is a natural substance found...

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