ESPKU Conference 2019

Update: this has been won by Killian Fitzpatrick! Well done Killian. Looking forward to hearing all about it! The PKU Association of Ireland have again been given the opportunity to nominate a person with a guest of their choice to…

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Press Release Friday 28 June 2019

PRESS RELEASE  Friday 28 June, 2019   PKU COMMUNITY GET APPROVAL FOR ONLY PKU DRUG - KUVAN   CELEBRATIONS ON INTERNATIONAL PKU DAY   Today, Friday 28th June, On International PKU Day, The PKU Association of Ireland (PKUAI) celebrate KUVAN® (sapropterin dihydrochloride), the only personalised…

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Minutes of the meeting 28th February 2019

MINUTES OF THE PKUAI MEETING  28th FEBRUARY 2019 – THE TALBOT HOTEL STILLORGAN Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Amy Meegan (Nutricia), Fiona Kiernan, Bernadette Gilroy, Mary-Ellen O’Shea (Tralee IT), Nicola Whelan (video call). European Parliament…

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Kuvan

Statement: The PKU Association Ireland The PKU Association Ireland (PKUAI) has been made aware that KUVAN® (sapropterin dihydrochloride) has been approved by the HSE Senior Leadership team and will be available in specific circumstances to our patient group for reimbursement from…

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