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PRESS RELEASE  Friday 28 June, 2019   PKU COMMUNITY GET APPROVAL FOR ONLY PKU DRUG - KUVAN   CELEBRATIONS ON INTERNATIONAL PKU DAY   Today, Friday 28th June, On International PKU Day, The PKU Association of Ireland (PKUAI) celebrate KUVAN® (sapropterin dihydrochloride), the only personalised…

PKUAI next meeting Wednesday 15th May, 7.30pm Clayton Hotel Leopardstown We are delighted to let you know that at this meeting we will be joined by Dr Cary Harding* from America, one of the world's leading experts on PKU.  Please…

MINUTES OF THE PKUAI MEETING  28th FEBRUARY 2019 – THE TALBOT HOTEL STILLORGAN Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Amy Meegan (Nutricia), Fiona Kiernan, Bernadette Gilroy, Mary-Ellen O’Shea (Tralee IT), Nicola Whelan (video call). European Parliament…

Statement: The PKU Association Ireland The PKU Association Ireland (PKUAI) has been made aware that KUVAN® (sapropterin dihydrochloride) has been approved by the HSE Senior Leadership team and will be available in specific circumstances to our patient group for reimbursement from…

All are welcome to the next PKU Association of Ireland meeting on the 28th February 2019 at 8pm in the Talbot hotel, Stillorgan, Just 10 mins from the city centre.  Come along to meet some families and adults with PKU.  Take…