Minutes of meeting 30 Aug 2018

Minutes PKUAI meeting 30th Aug 2018 at 7.30pm at the Clayton Airport Hotel, Dublin Attendees: Fergus Woodcock, Karen Willetts, Karen Lavery, Nicola Whelan via skype, Amy Meegan (Nutricia), Pauline Woodcock, Colm Galligan, Gary Conway, Ciara Cadwell, Riah Berry and Mark…

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ESPKU Conference 2018

The Vitaflo team in Ireland are kindly offering to fund 3 places, with a plus one each, to attend the ESPKU conference in Venice on the 1st November. See https://www.espku.org/conferences/e-s-pku-conference-2018/ for details on the conference. Vitaflo will cover the cost…

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Next PKUAI meeting ALL WELCOME

The next PKUAI meeting will take place on Thursday 30th August at 7.30pm - 9.30pm at the Clayton Airport hotel ALL WELCOME! Though not necessary, please RSVP to info@pku.ie if you plan on attending (it helps to know how many…

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PKU Adults needed for research at Mater

From the Mater Hospital: Phenylketonuria (PKU) Patients Needed for Research The National Centre for Inherited Metabolic Disorders (NCIMD) – ADULT SERVICE - is conducting a study aimed at better understanding the impact of PKU on cognitive and executive function. Specifically,…

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Press release 28 June, 2018

IRISH PKU RARE DISEASE PATIENTS SHARE PKU AWARENESS ON HISTORIC DAY   Inaugural ‘Patient Voices’ Breakfast Briefing’ on Irish PKU Journey   Today, Thursday 28th June, The PKU Association of Ireland (PKUAI) join PKU organisations all over the world to celebrate International…

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