Ensure your future health PKU Adult Online Webinar* – ensuring your future health! Date: Wednesday 14th Sept @8pm Registration: Details TBC soon The PKU Association of Ireland (PKUAI) is delighted to announce it is hosting a joint adult online webinar…
An Irish Mothers Significant Contribution To Medical History Unlocking of The First Treatment For Rare Disease PKU The Leitrim Historical Society are delighted to welcome Bernadette Gilroy, Chairperson PKU Association Ireland (PKUAI) to present a public lecture on Leitrim lady Mary Rooney Jones (1917 - 1981) who fought…
Wenesday 19th May 2021: Message from Metabolic Unit, Temple St : Kuvan PPN High-tech drug prescriptions including Kuvan are being affected by the cyber attack on the HSE. The normal process in prescribing Kuvan through the HSE high-tech hub is…
Please find attached information on a study taking place in the Mater. It is hoped that the study will help the NCIMD-Adult Service Team better understand the needs of their patients and facilitate ways to improve delivery of the service.…
Community survey to assist shaping new PKUAI website The PKU Association of Ireland (PKUAI) is a small voluntary group set up to support patients and carers of patients with PKU in Ireland. The PKUAI are refreshing the existing web-site creating…