Community survey to assist shaping new PKUAI website The PKU Association of Ireland (PKUAI) is a small voluntary group set up to support patients and carers of patients with PKU in Ireland. The PKUAI are refreshing the existing web-site creating…
Dear adults with PKU (16 years plus) and parents/caregivers of adults with PKU (16 years plus), We would like to invite you to complete a short (approximately 10 minutes) survey to ascertain if there is a need for new treatment options…
PKU & Gene Therapy Market Research A research study is seeking PKU Adults & PKU carers / parents interested in taking part in market research about Gene Therapy for PKU. The study aims to better understand the lived experiences, challenges and…
The PKUAI ‘In Conversation series' launched on Friday 9th October with guest speaker Krystal Suchocki, PKU Adult & Registered Nurse with Classical PKU discussing: Living with PKU and Palynziq® for the past 10 years. To watch the video please click https://youtu.be/rArtXIO-TVg…
PKU "LIVING IN CHALLENGING TIMES” PKU COMMUNITY UNITES FOR INTERNATIONAL PKU DAY Today, Sunday 28th June 2020, The PKUAI (PKU Association of Ireland) join with PKU communities throughout Europe and across the globe to celebrate International PKU Day and unite in calling for…