ESPKU Conference 2019
The PKU Association of Ireland have again been given the opportunity to nominate a person with a guest of their choice to attend this year's ESPKU conference in Turkey on the 31st October to the 3rd November 2019. For details…
Press Release Friday 28 June 2019
PRESS RELEASE Friday 28 June, 2019 PKU COMMUNITY GET APPROVAL FOR ONLY PKU DRUG - KUVAN CELEBRATIONS ON INTERNATIONAL PKU DAY Today, Friday 28th June, On International PKU Day, The PKU Association of Ireland (PKUAI) celebrate KUVAN® (sapropterin dihydrochloride), the only personalised…
PKUAI next meeting Wednesday 15th May 7.30pm Clayton Hotel Leopardstown
PKUAI next meeting Wednesday 15th May, 7.30pm Clayton Hotel Leopardstown We are delighted to let you know that at this meeting we will be joined by Dr Cary Harding* from America, one of the world's leading experts on PKU. Please…
Minutes of the meeting 28th February 2019
MINUTES OF THE PKUAI MEETING 28th FEBRUARY 2019 – THE TALBOT HOTEL STILLORGAN Attendees : Karen Willetts, Fergus Woodcock, Pauline Woodcock, Karen Lavery, Amy Meegan (Nutricia), Fiona Kiernan, Bernadette Gilroy, Mary-Ellen O’Shea (Tralee IT), Nicola Whelan (video call). European Parliament…