We are the PKU Association of Ireland. Our purpose is to help and support those affected by PKU, and other metabolic disorders that can be managed just like PKU.
We share tips, advice, stories, and recipes and generally support each other as we learn about this rare condition, helping to make it as easy to manage as possible.
Our other goal is to strive continuously for the best possible care for people with PKU. This includes raising awareness of the condition and calling for more proactive and holistic care throughout childhood and into adulthood.
We believe that with a more determined and scientific approach to treating PKU, people living with PKU will find it less of a burden on their lives and will be better able to reach their full potential.
We want this site to be a useful resource for all our PKU families and individuals, so please do get in touch if you have questions, are able to help, or have something to share.
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Recent News
Rare Diseases Ireland
Delighted to announce that the PKU Association of Ireland has become a member of Rare Diseases Ireland. Here is a link to their website http://rdi.ie/ for more info. PKUAI…
Do you have PKU? Be Heard!!
Adults with PKU in Ireland please consider participating in this much needed Quality of Life Research. Research IT Tralee Research IT Tralee Q&A
PKU Adults needed for research at Mater
From the Mater Hospital: Phenylketonuria (PKU) Patients Needed for Research The National Centre for Inherited Metabolic Disorders (NCIMD) – ADULT SERVICE - is conducting a study aimed at better understanding…
PKU Association of Ireland Charity status
Delighted to announce that the PKU Association of Ireland is now registered with the Charity Regulator here in Ireland!! Registered Charity Number (RCN): 20202487 Well done to all involved who…
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