We are the PKU Association of Ireland. Our purpose is to help and support those affected by PKU, and other metabolic disorders that can be managed just like PKU.
We share tips, advice, stories, and recipes and generally support each other as we learn about this rare condition, helping to make it as easy to manage as possible.
Our other goal is to strive continuously for the best possible care for people with PKU. This includes raising awareness of the condition and calling for more proactive and holistic care throughout childhood and into adulthood.
We believe that with a more determined and scientific approach to treating PKU, people living with PKU will find it less of a burden on their lives and will be better able to reach their full potential.
We want this site to be a useful resource for all our PKU families and individuals, so please do get in touch if you have questions, are able to help, or have something to share.
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IRISH PKU RARE DISEASE PATIENTS SHARE PKU AWARENESS ON HISTORIC DAY Inaugural ‘Patient Voices’ Breakfast Briefing’ on Irish PKU Journey Today, Thursday 28th June, The PKU Association of Ireland…
PKUAI are delighted to be hosting their inaugural social evening celebrating International PKU Day - Thursday 28th June, from 7.30 pm at the Clayton Airport Hotel Places are limited and…
For those with HCU - Experience of diagnosis and patient satisfaction https://www.hcunetworkaustralia.org.au/experience-of-diagnosis-and-patient-satisfaction/
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