We are the PKU Association of Ireland. Our purpose is to help and support those affected by PKU, and other metabolic disorders that can be managed just like PKU.

We share tips, advice, stories, and recipes and generally support each other as we learn about this rare condition, helping to make it as easy to manage as possible.

Our other goal is to strive continuously for the best possible care for people with PKU. This includes raising awareness of the condition and calling for more proactive and holistic care throughout childhood and into adulthood.

We believe that with a more determined and scientific approach to treating PKU, people living with PKU will find it less of a burden on their lives and will be better able to reach their full potential.

We want this site to be a useful resource for all our PKU families and individuals, so please do get in touch if you have questions, are able to help, or have something to share.

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Recent News

PKU Association meeting

The next  PKUAI meeting is on the 9th January at 7.30pm in Crowne Plaza Santry. ALL WELCOME. Though not necessary if you could let me know by email to info@pku.ie…

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Calling on all PKUAI members!

We need to get a meeting with Simon Harris TD, Minister for health. All non constituents can request an appointment 'to discuss pertinent information relating to the Kuvan campaign for…

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